just another day in sue ryder home
Thursday, June 14th, 2007what sort of things would you be thinking, if you are in a room full of people who are either drooling with saliva, or hands that can’t stop shaking, or keep making jerking purposeless movements every 10 seconds, or can only grunt unintelligibly, or whose eyes just stare at nothingness in front of them. thankful because i am ‘normal’? bursting with sympathy? or proabably start making promises that i would study hard and become a brilliant nurologist that will come up with a cure for all these neurological diseases?
amazingly enough, i just felt amazed at that time. i kept count of how many times julie have to kick around untill her socks fell off. i kept note of how charlotte’s grunt sounded like an intersection betweeen a laugh and a cry. and every 5 minutes or so i would turn just in time to see denise bite her right hand, or rather, her bandaged right hand, and another strand of fibre came loose each time. and i jumped everytime paul screamed about nothing or at no one in particularly, just out of randomness.
i am not incapable of emotion. but let’s think about it. emotion only comes when we start to label these people.sufferrers of neurological diseases, or recipient of head injury or stroke causing lasting brain damage, that’s what they are according to society. julie has huntington’s. charlotte has huntington’s too. the frail lady at the corner has advanced parkinson. paul has had rta, brain injury. denise..well i seriously don’t know.( what disease condition leads to hand biting? )
so yeah..when we start to talk about julie, we’ll say julie who? ohh the one who had huntington’s when she was 45? ooh the one who couldn’t speak, eat, or do anything for herself that made her family send her to the care home? yeah..the one whose husband is very loyal and hasn’t remarry to this very day and dutifully come to visist her every other day..and her kids, yeah her kids can barely recognize her anymore..she isnt anything like the mother they remember..
i looked at julie. she’s well taken care of. she has someone to wash her twice a day. someone by her side 24/7, someone to keep her company. and set all the tangible, visible things about her aside, is she aware of what’s happening to her now, of what she has become? has she not also lost the ability to feel any emotion because of the disease; to reminisce about her past, to regret about the things that she couldn’t do now, to be angry at the disease for stripping her off everything she treasures in life. if that is the case, then probably the only thing she is feeling right now is..content.
of course it’s sad. i wouldn’t wish anything like this even to my biggest enemy. but it has happened. after the initial shock and denial, after the tears and more tears, adjustments were made and lives move on. although things never is the same.
and that is life. things happen and we just have to deal with it. and in a way that is how medicine works too. sure, doctors may be pictured as that angel in white with sthetoscope dangling around the neck with a healing touch and save lives. but that only happen very rarely for neurological diseases for example, sure the doctor deserve a clap in the back after correctly diagnosing the patient’s medical condition. but after that, what? there’s only so much drugs can do. nothing else has proven to be curative. and that angel in white can only stay in the sidelines, watching helplessly as the patient deteriorates, losing a little bit of themselves to the disease with each passing day.